march appointment 2013

Sunday March 3rd

It was really hard to get out of bed. I probably hit the snooze three times but finally got up and moving. After getting dressed I let the dogs out and fed them. By that time Dewon was up and ready so I grabbed the few last minute things I needed and we were quickly out the door and headed for the airport. The flight was smooth, no turbulence this time, and it seemed like we got to Cleveland faster than normal. The down fall though was we had to get food before we went to claim our bags. I waited to eat and was starting to have vision problems so we decided it would be best  to get something in me before I passed out. So after finding some chicken fingers we were on our way to the hotel. Same routine after that eat and nap. At six we went over to the guest house, a lot of patients stay there after they get discharged from the hospital until they are cleared to go home. We had dinner at this little Deli there with the girl who I had met the last time I was admitted, the one who had a heart transplant. I felt kind of bad because as soon as she came in I started asking her questions. She said she was doing great and was able to ride a bike in physical therapy for a few miles. That she felt amazing working out and was hopeful to go home the coming Wednesday. I asked her about her water retention and she too retained in her abdomen area. She said after the transplant it basically just melted away and she noticed a huge change. This I am really looking forward to. I am ready to be small again and not look preggo. Every time I talk to her I just get this overwhelming feeling of joy and hope. Not only is she an awesome person but she also makes me less scared and anxious about what I am about to endure. I just think if she can do it so can I. To see her smile and tell me about the things she is now able to do makes me want to do the transplant today...

Monday March 4th

Today felt like it dragged on and on. I waited an hour in the lab department for blood work after my EKG. After missing one appointment waiting they finally told me to go ahead to my next appointment and come back later, they were slammed packed. I did however meet the cutest old man while waiting and a couple who was there to find out if her husband had cancer after he had a piece of his bladder removed. I guess they found a spot on his kidney after the surgery and was worried. They were the nicest people and after sharing our stories I said a little prayer and went on about my day. My appointment with Doctor Mountis was pretty quick. She instructed me to keep up with all my same medications and to take metolizone (a booster pill to help the torsemide) when I get home. She also said I might have to take the metolizone once a week just to help me keep my weight down and keep the fluid off. We also discussed it and because I have had so much anxiety lately we felt it would be best for me to start on a low dose of prozac to help me from having panic attacks and therefore having heart issues. I have had so much stress the last few weeks with the whole transplant "upgrade", finding out who my true friends are the hard way, and of course Dewon being a pain in my rear. So hopefully this medication will keep me from having a freaking heart attack because I can't handle anything else on plate right now. I also had a visit with Doctor Varma who is my doctor for my AICD ( the device that keeps my heart beating and shocks me if it goes too fast). He said everything looked good with my device. The only thing he had a concern about was that I was having some atrial tachycardia ( fast heart rate in  the top chamber of my heart). So he would discuss with Dr. Mountis about starting me on cumadin to replace the aspirin I take. I will find out what they decide when I come back in a month. After that we went back down to get my blood work finally. Then we headed on back to the hotel where I fell asleep. After waiting hours for each appointment and the day slowly dragging I couldn't take it anymore, my poor body was hurting. So now we lay here and watch T.V. back to Ft. Belvoir tomorrow and to our regularly scheduled lives.

On a side note I plan to do a bucket list for when I get a heart. I know its a little backwards but I have so much I want to do when I get to feeling better I want to put it on paper. So look forward to seeing that soon. I have probably not made any sense in this last update but I am tired and hungry again so I am off to get some food so I can hit the sack. Thank you as always for your support and prayers! <3

By the way I seen the couple on the way out of the hospital and the guys tests came back that he had no cancer. Praise the Lord! A wonderful end to my hectic day.