Feb part 5

Friday evening I went for my CT scan. The results came back that there was no trauma to my brain besides the stroke that they already knew was there. So that was a positive thing. The rest of the night we relaxed. Right before bed I got a visit from a young lady who had just had a heart transplant earlier in the week. She looked amazing and was sitting up in a wheel chair and smiling. We spoke for over an hour about transplant and what I could expect after transplant, her personal story, my story and also her family and boyfriends experience through her transplant. It was so nice of her to come talk with me and it really put me at ease. The similarities that we had were crazy. She has the same exact heart disease that I do, she had an ICD , and a lot of the same problems that I am having now. The only difference is that she does not have the antibody complication like I do.

It is a scary thing when you feel like no one can relate to you, and even though my family tries they will never know what I feel. She however knew exactly and it was the most amazing experience to relate like that and feel the joy she and her family had. This is what it all comes down to. Hearing her say how great she feels and how relieved and happy her family was just made my heart smile. Her dad even gave me a hug and told me good luck which made me almost cry. It's funny how my heart disease has brought on some of the worst moments in life and how I fear so much of the unknown. But then they have also brought me so much love, kindness and so many relationships that just make me feel undeserving of it all.

Saturday morning the doctors came and and wrote my scripts and signed my discharge papers. With the following orders. Increase my diuretic medication (toresimide), come back in one month for a check up, keep phone on me at all times and have my bad packed for the day they call me and tell me they have a match, and to take make sure I know how to get to the nearest airport which is in Manassas, VA.

Sunday we flew home and so far I have been feeling pretty darn good. I have had two bad days but that is a blessing when before I was having 5 out of 7 days being bad. I am now just anxious for the call. I have probably packed, unpacked and packed again my Cleveland bag. I want to make sure I have everything I need and always think of more stuff I might need or want. I'm Ready!

Next appointment is March 4th so I will be updating you all again soon :)