Feb appointment part 3

Wednesday night I had a weird rhythm and some chest pain that followed. When I called the nurse everyone started freaking out and they called the response team, meanwhile Dewon went to the ice machine and got me ice water to stick my face in. While the nurses and doctors were freaking out Dewon got me settled and with the help of placing my face in the icy water my arrhythmia went away. By the time the response team got there they had nothing to really do and I guess the head guy was mad and was telling me I had the arrhythmia because of anxiety. So after I told him how I felt about that (it was not nice) he left. There are a lot of things I don't know but one thing I have become an expert on is my heart rates. I can tell you if its fast, slow, skips a beat, anything. After I calmed down I ate a late snack and went to bed. Since I have to be NPO (no food or liquid) after 12 am I always eat a snack  my favorite is hot Cheetos :)

Thursday- I woke up bright and early. The night before I had to wear a pulse oximeter to see if my breathing fluctuates as I slept. Hopefully I should know those results on Monday. At 9 am I went down for my heat cath. The doctor who did my consent didn't want to give me Ativan (anxiety medication) so when I went down to have the procedure the nurses could tell. So after a kiss goodbye from Dewon they got me back to the room. Then quickly gave me some versed and started the procedure. I guess I was a great patient this time because before I could ask any questions it was over and they were taking the swan out of my neck. When I got back up to the room Dr. Lee was there and he said that there was no significant change in my pressures but there was more fluid on my heart. He also said they had not heard back about my status change with unos and that he was going to discuss with Doctor Mountis about starting the plasma floresis to clean my blood of the antibodies.   He said he would come back and tell me what they had decided but he never did.

I also spoke with a transplant patient who had the plasma floresis and she said it was very easy. You sit for three hours and while the machine cleans your blood. She said she had no side effects besides being tired after and that if she did not eat before the procedure she would get nauseous. So that helped ease my mind about the whole situation.

The Psychiatrist for transplant also came to check in on us and explained what would happen post transplant and answered some questions that we had. She is going to set up so I can talk to two ladies who just had a transplant in the last month so that they can explain what I will be going through in the early stages of transplant and what to expect.

Now Dewon and I are watching TV shows and trying to relax, I finally feel better so we did go on a short walk to get me out of the room. But I am still very tired so I am off to bed. Keep the prayers coming. Thank you all!

And don't forget Congenital Heart Disease Awareness Week starts today.