the quick life story of my heart

I was born with hypertrophic cardiomyopathy. As a child I went through many open heart surgeries for my ventricular apical-aorta conduit it resulting in complete AV Block. Later I developed atrial fibrillation and got my first pacemaker. My teenage years I started having ventricular fibrillation and got a dual chamber ICD. In 2008 I was sent to Shands of UF to start pre-transplant procedures. I was automatically a status 1B on the UNOS list and was so excited. A month later I was taken off the list while doctors told me they would re look at my case in 2 to 5 years because I had high antibodies and faced rejection with a new heart. 6 months later at a regular check up I was told my heart was much worse and I needed to go through pre-transplant again. With one false excitement months before I was scared to go through it all again. January 2009 I was admitted to Shands and went through the pre-transplant procedures again. Numerous doctors later I was denied once again due to my antibodies and high pressures in my lungs. Feeling  like no one could help me I visited Cleveland Clinic of Cleveland, Ohio. The doctors at Cleveland were  hopeful and when the surgeon told me he was willing and capable of giving me a new heart I was speechless. Finally!!! I am currently a status 2 at Cleveland Clinic and have appointments every couple of months. Cleveland gave me hope again and I am blessed to have such a great team willing to work to give me a better life.