Day 1 Disaster

writing blog

"The box"

second breathing machine

Woke up early for my appointments today.I started with an x-ray and then I went to the pulmonary function lab where I did breathing tests with these two machines. The box was scary and they cut the air off for a few seconds and made me blow in a tube. NOT FUN! The last test I had to walk for six minutes while they monitored my heart and oxygen saturation's. I made it the whole six minutes and was very proud but also very tired. I then went to a gyno appointment where they said everything was good but the doctor was rough with me and that made me mad. Next, I went the EP Clinic where they checked my pacemaker and when they tested my bottom lead they lost capture of my heart beat and it made me cry and feel bad. (This means they pace the bottom chamber of my heart and they look for a pause or stop and that makes me feel bad. It only lasts for a few seconds but they need to do it in order to make sure my leads that attached from the device to the heart are working properly.) I then seen my physician and he said that he wanted to take the bottom two leads out completely and add a new one that would work better for me. They have to go in and extract them using a laser and there are some severe risks involved which he explained to Dewon and I. Last, I went to see my pre-transplant doctors and they believe taking the leads out and putting a new device in will benefit me in the long run. They also were concerned with all the extra fluid I have on my heart and lungs.So they admitted me today. (For those of you who don't know me when I retain fluid my belly swells, therefor I look pregnant but it is really just the extra fluid, I weighed 133 today and my belly was huge meaning the diuretics are not working.) So the plan is to admit me to the heart unit and I will be getting lots of diuretics (water pills) to help me loose the fluid and for them to watch me. The goal is to get me in great shape all around so that the surgery will go well and I will have little to no complications. We do not have a surgery date now and were told we would be here the rest of the week at least so I am not very happy....but I do understand. I have been in my hospital room for about four hours now and had some chest pain and irregular beats so they gave me morphine and the nurse also started the lasix so I am really sleepy and peeing every five minutes...not a good combination. :/