update and biopsy # 7

In the past three weeks a lot has happened so let me start by giving you a small update. 
First, I started to feel different, almost like I was sick with the flu but I had not physical symptoms like fever or anything. I also had a faster heart rate. I could be any where between 90 to 137. So I called the clinic and at first they thought it was because my magnesium was low. So I went to the ER and they gave me IV meds to help. Meanwhile, my husband was out of the country for all of this so I was a nervous wreck the whole time. Thank God for my neighbor who helped me and sat in the ER with me. I admit I did feel better after the magnesium drip and my heart rate did go down but the next day the fast heart rate was back. Long story short, the clinic diagnosed me with CMV after blood tests were completed. So I was told to rest and start a medication called Valcyte. This medication I was on when I got discharged but they stopped it in November. Shortly after I started the Valcyte I got sick with a cold. Thanks hubby for bringing a cold home from work...  So I haven't really been doing much. I was told no exercise and to not overdue it. By the way CMV is a virus that my donor and I both had. It is dormant in most people unless you are pregnant or have a compromised immune system like me. It just makes you feel like you are sick and you don't have much energy. It has to be treated though because it can be life threatening.

So biopsy 7 was a breeze. I got all the tests done before like ekg and labs then went straight back to the cath lab. I was in and out quickly. I am becoming a pro at this. I then went to infectious disease where they tested me for the flu and went over what CMV was and their plan to treat it. Next was the CNP and he just went over all my meds and followed up with me. Lastly we seen doctor Mountis for a few minutes. She was extremely happy with how I was doing.

I got the call last night and I had another Zero on my biopsy. I have to admit I was so happy because I was terrified it might come back bad because I had been sick and tested positive for CMV.
So this is the plan:
-no more cellcept for right now. my white blood cell count is low so they stopped it until further notice.
-decrease prednisone to 15mg
-decrease prograf to 2 mg twice a day
-no more iron
-increase magnesium to 800 mg twice a day
-labs once a week for four weeks
-come back late February for next biopsy
-get a vitamin D test done
-I can work out again...yay!
All great news! I have decided that prednisone is the devil though! It is making my face so fat. I hate it but the doctor said it will get better as they keep decreasing my meds. I guess its a small price to pay when you have a great new heart.