July update

Hello!

There has been so much going on I thought I would update everyone.

First I got an email from my doctor at Cleveland Clinic and they sent my case to Cedar Sinai in California to be reviewed. I was told through the grapevine that because my case was very complex, they were trying to see if someone else could handle it. The way I understand it is they are pursuing cases that they know will be a success and because my case is difficult they were seeing if another clinic would be a good fit for me at this time. Also, the clinic in California does more cases with high antibodies so this might be a good thing. They are still searching for a good match for me at Cleveland I am still be shopped around. At first I was pretty upset but now I am just letting God take control. If I am meant to be transplanted at Cleveland then I will be. Dewon and I are also looking into all possibilities and staying hopeful.

I also have been having some breathing problems lately. I have been to the emergency room a lot lately due to not being able to catch my breath. It has been very scary for me. The first time I was home with my siblings and friends came over to help but I just panicked. My lips were turning blue and Dewon wasn't there, which just made things worse. He really is my rock. Once they gave me some oxygen and my friend calmed me down things got better. The second time I was at home alone and I couldn't reach Dewon on the phone and finally called an ambulance. I felt so embarrassed. The EMT's were amazing though and got me some oxygen and talked me through it. It has really been freaking me out. Like I have said before I deal with chest pain and dizziness so much better than all of this. Not being able to breathe is one of the scariest things ever.

With all of this going on I have been pretty stressed and anxious. So I have been trying to stay busy as much as possible. I just feel like it's all too much at once and I am going to have a break down if I don't stay positive and active. So I am planning my birthday trip with Dewon to New York to see family and have our first real vacation together. The good news is I have had little actual heart problems. My siblings also came to visit and I was able to go to Six flags with them. That in it's self was a miracle. I was able to enjoy the day with them, and thank goodness I was approved for a wheelchair.

So that's it. Thanks for the continued support and prayers.