Cleveland Appointment 2/16/2012

My appointments went great. I did good with all my tests and was declared Cancer free from the dermatology department. My next appointment was with the pacer clinic. The doctor came in and looked at my device. My device has moves slightly and is sticking up but the only way to fix it is to open me back up and move it but I chose to just leave it alone. If it is not hurting me then I say just leave it, no need to go under again. They also tested my device which I am normally terrible at but this time it was easier and I didn't cry which is huge for me.  I then met with the Genetics nurse and she went over my family history and health information. She did some research and thinks I might have Noonan Syndrome so I will be evaluated for that at my next appointment. I will also be tested to see if I wanted a biological child, if the baby would have a heart defect too. Plus we might get lucky and find where and how I got the heart defect. After genetics I went to see my pre transplant doctor and she was so excited to see how well I looked. I weighed less than I had in a year and I was not carrying any extra fluid on my lungs or heart which was great. She was thrilled with how well I was doing and that I was more active. My last appointment was for my heart cath. I changed into a gown grabbed my bear and went to the cath lab. They ended up checking my pressures three times that day because the doctor said the numbers didn't reflect how well I was doing and it didn't make sense. My pressures were worse then the last time they had checked but the doctor was ok with sending me home because I had been doing so well. I try not  to let the statistics and number get me down and just live day to day. I know the numbers look bad for me but I have always been a person who fought and made it through anything a doctor told me I couldn't. I guess that is the stubborn in me to prove someone wrong. So I am taking it one day at a time. Overall I have been doing great and am happy to be home. I go back to Cleveland on May 22-24 for a lot of testing and re-evaluation and hoping for a good outcome again. Until then....